Amyotrophic Lateral Sclerosis (ALS) is a disease with fast progression that reduce the independence for activity of daily life and instrumental activity of daily life. As a result, it is important to be effective in the orientation about assistive technology (AT) provided to the patient. Considering, also, that Brazil is a huge country and for many people is not easy to have the right information about AT in time, it was created the MIBRELA (Brazilian interactive manual for ALS), for ALS patients and caregivers, in order to facilitate the information access.
MIBRELA was created based in a paper printed manual used by the occupational therapy department in the ALS ambulatory from Federal University of São Paulo. It was elaborate by the occupational therapists Adriana Nathalie Klein and Silvia Nakazune, oriented by Dr. Acary de Souza Bulle Oliveira, Dra. Pola Maria Poli Araujo and Dra. Sissy Veloso Fontes. The first version was developed by the computer scientist Marcos Massanori Takizawa and Jorge Sunao Arai, and was a candidate for the first Medicine PG Award.
MIBRELA aim is to help therapist to be more effective in their orientation and present some possible solution, commercial or customized, for make easy patients and caregiver daily life difficult. MIBRELA does not replace the occupational therapist intervention, only this professional can evaluate and indicate the best AT device for the patient.
IPG believes that the knowledge is an important tool to improve the quality of life of patients and caregiver, because of this IPG have been improving and update MIBRELA constantly.
It is important to remind that IPG does not intermediate any sale, if one device seems interesting, the patient should consult the occupational therapist responsible.
Access MIBRELA below: