Formulário de busca


Programas

HUMANIZAÇÃO - visa melhoria da qualidade de vidados pacientes. INCENTIVO À PESQUISA CIENTÍFICA - busca diagnóstico e cura da Esclerose Lateral Amiotrófica.


Associações

Membros da International Alliance.

África do Sul
Motor Neurone Disease Association of South Africa
Dr Franclo Henning, Chairman Rina Myburgh, Secretary
P.O. Box 789 Howard Place Western Cape 7450 South Africa.
Tel: +021 531 6130
Fax: +021 531 6131
E-mail: mndaofsa@global.co.za
Site: http://www.mnda.org.za

Alemanha
Deutsche Gesellschaft fur Muskelkranke e.V. DGM
Horst Ganter, Geschaftsfuhrer Im Moos 4, 79112 Freiburg, Germany
Fax: +49 7665 944720
E-mail: info@dgm.org
Site: http://www.dgm.org

Argentina
Asociacion Distrofia Muscular
Cordoba 5824, 1414 Buenos Aires, Argentina
Tel: International +54 1 773 1714
Fax: International +54 1 956 1471 / +54 1 956 0120
E-mail: dubro@fibertel.com.ar

Austrália
Motor Neurone Disease Association of Australia Inc.
Carol Birks and David Ali, Alliance Representatives Ralph Warren,
Chairman/President MND Australia
P.O. Box 785 Gladesville NSW 1675 Australia
Tel: +61 2 9816 5322
Fax: +61 2 9816 62077
E-mail: mndaa@mnd.asn.au / david.ali@dhs.vic.gov.au
Site: http://www.mndaust.asn.au

Bélgica
ALS - Liga België
Danny Reviers, President
Kapucijnenvoer 33 bus 1 B-3000 Leuven Belgium
Tel: +32 (0) 16 23 95 82
Fax: +32 (0) 16 29 98 65
E-mail: info@alsliga.be / secretariaat@alsliga.be
E-mail: danny@reviers.be
Website: www.alsliga.be

Brasil
Associação Brasileira de Esclerose Lateral Amiotrófica (Amyotrophic Lateral Sclerosis Brazilian Association) – ABrELA
Acary Souza Bulle Oliveira – Founder President
Abrahão A.J. Quadros – President Director
Roberto Dias Batista Pereira – Scientific Director
Elica Fernandes – Executive and Social Manager
Rua Estado de Israel, 899 - Vila Clementino 04022-002 São Paulo - SP Brazil
Tel: 55 – 11 – 5579 4902
Fax: 55 – 11 – 5579 2668
E-mail: abrela@abrela.org.br
Site: www.abrela.com.br

Canadá
ALS Society of Canada
Lindee David, CEO
3000 Steeles Avenue East, Suite 200, Markham, Ontario L3R 4T9, Canada
Tel: International: +1 905-248-2019
Toll Free: 1-800-267-4257
E-mail: alscanada@als.ca
Site: http://www.als.ca

China
Tai-chung office
5F, 18 Chung-Shang Road, Section 2, Lane 184, Tang-Tse Township, Taichung
County, Taiwan, 427, Republic of China
Tel: +886 2 2820 1357
Fax: +886 2 2820 1431
E-mail: mnda2874@ms39.hinet.net
Site: www.mnda.org.tw

Chinese ALS Committee
Chinese Medical Doctor Association
Building 3, No. 11 Xinzhong street
Dongcheng District
Beijing PRC 100027
Tel.: +861064162171
Fax.: +861064161186
E-mail: als@cmda.org.cn
Site: http://jdr.cmda.org.cn

Chipre
Cyprus Institute of Neurology and Genetics
Dr Theodore Kyriakides MRCP, Alliance Representative
P.O. Box 23462, Nicosia, Cyprus
Tel: +357 2235 8600
Fax: +357 2235 8237
E-mail: theodore@cing.ac.cy
Site: www.cing.ac.cy

Coreia do Sul
Korean ALS Association
Kwang-Woo Lee Professor of Seoul National University College of Medicine Chairman
of Seoul National Hospital Department of Neurology
Korean ALS Association Building, Seocho-Ku Bangbae-Dong 906-5, Seoul,
137-842 South Korea
Tel: International +82 2 760 3880
Fax: International +82 2 744 1785

Croácia
Union of Muscular Dystrophy Societies of Croatia
Marica Miric, President Marija Sostarko, Medical Advisor
Nova Ves 44, 10000 Zagreb, Croatia
Tel/Fax: +385 1 466 6849
E-mail: sddh@zg.t-com.hr
Tel/Fax: +385 98 218 644
Tel: +385 1 461 6046 (Marija Sostarko) / Fax: +385 1 461 6045
E-mail: marija.sostarko@zg.htnet.hr
Site: www.sddh.hr

Dinamarca
Muskelsvindfonden
Jette Møller, Alliance Representative
Kongsvang Allé 23, DK-8000 Aarhus C, Denmark
Tel: International +45 89 48 22 22
Fax: International +45 89 48 22 12
E-Mail: reception@muskelsvindfonden.dk
E-Mail: jemo@rcfm.dk
Site: www.muskelsvindfonden.dk

Escócia
MND
Craig Stockton, Chief Executive
76 Firhill Road, Glasgow, Scotland, G20 7BA
Tel: +44 141 945 1077
Fax: +44 141 945 2578
E-mail: info@scotmnd.co.uk (General Correspondence)
E-mail: craig.stockton@scotmnd.co.uk (Craig Stockton)
Site: www.mndscotland.org.uk

Eslôvenia
Drustvo Distrofikov Slovenije (Muscular Dystrophy Association of Slovenia)
Boris Sustarsic, President Ivo Jakovljevic, Secretary Andreja Sustar,
Social Activities Organiser Linhartova
1, 1000 Ljubljana, Slovenia
Tel: +386 1 47 20 500
Tel: +386 1 47 20 552 (Andreja Sustar)
Fax: +386 1 43 28 142
E-mail: info@drustvo-distrofikov.si
E-mail: andreja.sustar@drustvo-distrofikov.si (Andreja Sustar)

Espanha
Asociación Española de Esclerosis Lateral Amiotrofica (ADELA)
Adriana Guevara, President
C/Hierbabuena, nº 12 (bajo) 28039 Madrid, Spain
Tel: +34 91 311 3530
Fax: +34 91 459 3926
E-mail: adela@adelaweb.com
Site: www.adelaweb.com

Fundacion Espanola para el Fomento de la Investigacion de la Esclerosis Lateral Amiotrofica (Fundela)
Teresa Salas Campos, Co-ordinator
Calle Sinesio Delgado, 10-28029 Madrid
Tel: + 34 91 453 2595
Fax: +34 91 733 6614
E-mail: fundela@fundela.info
Site: www.fundela.info

EUA
Les Turner ALS Foundation Ltd
Wendy Abrams, Executive Director
5550 West Touhy Avenue, Suite 302 Skokie, Illinois 60077, USA
Tel: International +1 847 679 3311
Fax: International +1 847 679 9109
E-mail: wendy@lesturnerals.org
Site: www.lesturnerals.org

Forbes Norris MDA/ALS Research Center
Dee Holden Norris, Advisory Director
The California Pacific Medical Center, 2324 Sacramento, San Francisco,
California 94115, USA
Tel: +1 415 923 3604/3608
Fax: +1 415 563 7325 / 415 673 5184
E-mail: norrisd@cpmcri.org

The ALS Association
Jane H Gilbert, President and Chief Executive Officer Sharon Matland,
Alliance Representative 27001 Agoura Road, Suite 150 Calabasas Hills,
CA: 91301-5104
Tel: +1 818 880 9007
Fax: +1 818 880 9006
E-mail: smatland@alsa-national.org
Site: www.alsa.org

ALS March of Faces
Ms Vicki L. “Terry” Frank
2316 Pine Ridge Road#391 Naples FL34109, USA
Tel: +1 239 417 5458
Toll Free: (877) 884 4798
E-mail: als@march-of-faces.org | terry@march-of-faces.org (Terry Frank)

ALS Hope Foundation # OK
Terry Heiman-Patterson, President Jeffrey S. Deitch, Director
219 North Broad Street, 7th Floor, PO Box 40777, Philadelphia, PA 19107
Tel: + 215 551 0967
Fax: + 215 762 8634
E-mail: info@alshopefoundation.org
Site: www.alshopefoundation.org

Communication Independence for the Neurologically Impaired, Inc (CINI)
Peter Strugatz, President
PO Box 263, Manorville, New York 11949, USA
Tel: +1 516 465 1629
Fax: +1 516 465 3744
E-mail: cini@cini.org
Site: www.cini.org

Therapy Development Institute
Robert Goldstein- Contact 215 First Street, Cambridge, MA 02142,USA
Tel: +1 617 441 7295
Fax +1 617 441 7299
E-mail: info@als.net
Site: www.als.net

Muscular Dystrophy Association, USA
Annie Kennedy, MDA Vice President - Advocacy
National Advocacy Office 1025 Connecticut Avenue, NW
Suite 907 Washington, DC 20036, USA
Tel: +1 202 828 8560
Fax: +1 202 828 8566
E-mail: akennedy@mdausa.org
Site: www.als-mda.org

Finlândia
The Finnish Neuromuscular Disorders Association (FMDA) - Sinikka Loukamaa, Secretary Project
Läntinen Pitkäkatu 35, 2100 Turku, Finland
Tel: +358 2 2739700
Fax: +358 2 2739701
E-mail: sinikka.loukamaa@lihastautiliitto.fi
Site: www.lihastautiliitto.fi

França
ARS (Association pour la Recherche sur la Sclérose Latérale Amyotrophique)
Emmanuel Hirsh, Presidente V.Meininger, Alliance Representative
75 avenue de la République, 75011 Paris, France
Tel: +33 1 43 38 99 11
Fax: +33 1 43 38 31 59
E-mail: ars@wanadoo.fr
Site: www.arsla-asso.com

Holanda
Vereniging Spierziekten Nederland (VSN) ALS
Diagnostic Support Group
Ria Broekgaarden, President
van Heutszlaan 6, 3743 JN Baarn, The Netherlands
Tel/Fax: + 31 33 480-2016
E-mail: vsn@vsn.nl
Site: www.vsn.nl

Hong Kong
Hong Kong Neuro-Muscular Disease Association
Peter Poon Ka Wing (Vice-Chairman) GiGi Yueng, Project Officer (Social Worker)
G/F, Wang Tau Hom Estate, Kowloon, Hong Kong SAR, PRC China
Tel: + 852 2338 4123
Fax: + 852 2338 2410

Índia
Motor Neurone Disease Association of India
Nicky Bhagat 40 Kolagarh Road Street No 5 Dehradun UN248001 India
Tel: +91 (135) 2754487
E-mail: nikinam@gmail.com

Irlanda
Irish Motor Neurone Disease Association
Ciara Hudson, Manager
Coleraine House, Coleraine Street, Dubllin 7, Ireland
Tel: International +353 1 873 0422
Fax: International +353 1 873 1409
E-mail: info@imnda.ie
Site: www.imnda.ie

Islândia
MND Association of Iceland
Gudjon Sigurdsson, Alliance Representative
P.O. Box 94 222 Hafnarfjördur, Iceland
Tel: +354 555 5727
E-mail: mnd@mnd.is
Site: www.mnd.is

Israel
ATLAS, Israel ALS/MND Association
Leah Schreiber, Chairman
Kehilat Vilna St., 47220 Ramat Hasharon, Israel
Tel: International +972 3 5403270
Fax: international +972 3 9341220
E-mail: atlasals@zahav.net.il
Site: www.atlasals.org.il

Itália
Associazione Italiana Sclerosi Laterale Amiotrofia (AISLA)
Dr Mario Giovanni Melazzini, President Lea Gavin, Secretary Monica Cattani
Alliance Representative Office Hours: from Monday to Friday 08:00 - 13:00
Viale Roma, 32, 28100 Novara, Italy
Tel: +39 0321 499727
Fax: +39 0321 499719
E-mail: segreteria@aisla.it
Site: www.aisla.it

Japão
Japan ALS Association
Mr Kimiaki Kanazawa, Secretary General
Zuicho Building 101 1-15-15 Kudankita Chiyoda-ku Tokyo 102-0073 Japan
Tel: +81 3 3512 9155
Fax: +81 3234 9156
E-mail: jalsa@jade.dti.ne.jp
Site: www.alsjapan.org

Letônia
Motus Vita - Association of People with Special Needs
Valerijs Rakovs - Chairman
Maskavas str. 421-18, Riga,
Latvia, LV-1063
Tel: +371 27449647
E-mail: motus.vita@gmail.com | motus.vita@inbox.lv
Site: www.motusvita.lv

Malta
The Malta Hospice Movement
Joanna Depares, Services Co-ordinator
35 Good Shepherd Avenue, Balzan BZN 16, Malta
Tel: +356 2144 0085/6
Fax: +356 2148 4769
E-mail: hospice@vol.net.mt
Site: www.hospicemalta.org

México
Fyadenmac (Familiares y Amigos de Enfermos de la Neurona Motora AC)
Mr Armando Nava Escobedo, President
Enrique Faman No 164-B, Col Aviacion Civil, Mexico 15740 D.F.
Tel: International +52 5 115 1285
Fax: International +52 5 115 1286
E-mail: administracion@fyadenmac.org | pacientes@fyadenmac.org
Site: www.fyadenmac.org

Moldávia
Moldovian Myopathy Association
Maria Tonu, President
24 A1 Bulgara str. Chishinau, MD-2001, Republic of Moldova,
Tel: +373 2 272687
E-mail: mtonu@mail.md

Mongólia
Mongolian ALS Association Otgonbat Ishdagva
PPO Box 22, Chinggis Avenue, Khan-Uul District, Ulaanbaatar, Mongolia
Tel: 00976 11362757
E-mail: alsmongolia@yahoo.com

Nova Zelândia
Motor Neurone Disease Association of NZ
Contact: Diane Robinson - National Manager
PO Box 24036, Royal Oak, Auckland 1453, 14 ERson Avenue,
Royal Oak Auckland, New Zealand
Tel: +64 9 624 2148
Fax: +64 9 624 2149
E-mail: mgr@mnda.or.nz
Site: www.mnda.org.nz

Peru
Asociacion Peruana de Ela-Apela (Peruvian ALS Association)
Lucas Tafur-Burga, President
Clinica Stella Maris, Av. Paseo de los Andres 923, Pueblo Libre, Lima, Peru
Tel: International +51 1 463 6666 ext. 170
Tel: International +51 1 461 6286/943-3153 (Adviser)
Tel: International: +51 1 247 5732
E-mail: luctabu@yahoo.es

Portugal
Associação Portuguesa de Esclerose Lateral Amiotrófica APELA
Pedro Monteiro - Presidente
Apartado 14032 (Caixa Postal)
1064-001 Lisboa
Tel: +351 213 861 482
E-mail: apela.geral@sapo.pt
Site: www.apela.pt

Reino Unido
Motor Neurone Disease Association (MND Association)
Kirstine Knox, Chief Executive Alan Graham, Alliance Board Member
PO Box 246, Northampton, NN1 2PR UK
Tel: +44 1604 250505
Fax: +44 1604 611852
Email: enquiries@mndassociation.org
Site: www.mndassociation.org

Romênia
AHNR (Asociatia Handicapatilor Neuromotor din România)
Ioana Monica Antoci, President
Str. Tribunal Dobra Nr 9, 2900 ARAD, Romania
Tel/Fax: International +40 57 27 27 07
Email: ahnrom@inext.ro

Suécia
Neurologiskt Handikappades Riksforbund (NHR) Reference
Group ALS
Mia Lundstrom
PO Box 49084, SE-100 28 Stockholm, Sweden
Tel: +46 8 677 70 10
Fax: +46 8 24 13 15
Email: nhr@nhr.se
Site: www.nhr.se

Suíça
Association Suisse Romande et Italienne Contre les Myopathies (ASRIM)
Anne Humberset
18 Route du Vignoble - 1175 Lavigny, Switzerland
Tel: +41 21 808 74 11
Fax: +41 21 808 81 11
E-mail: info@asrim.ch
Site: www.asrim.ch

Taiwan
Taiwan Motor Neuron Disease Association
Dr Tsui-Leih Hsu, President Professor Ching Piao Tsai, Alliance Delegate
Headquarter: 16F Chung-Chen Building, 201 Shih-Pai Road, Section 2, Pei-Tou District, Taipei,
Taiwan 11217, Republic of China
Taipei office: 1F, 13 Shih-Chien St., Lane 56, Pei-Tou District, Taipei, Taiwan 11217, Republic of China

Turquia
Association of Muscle Disorders
Professor Coskun Özdemir, President
Hatboyu cad. 12, Yesilköy 34800 Istanbul, Turkey
Tel: International +90 212 593 0975 / +90 212 663 6553
Fax: International +90 212 663 0168
E-mail: info@kashastaliklari.org.tr
E-mail: Coskunoz@superonline (Professor Coskun Ozdemir)
Site: www.kasder.org.tr


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